Kathryn Burr 7/9/25 Kathryn Burr 7/9/25 Make-A-Wish Trip Update: Part 2 — BNSF & Grapevine Railroad Read More Kathryn Burr 5/28/25 Kathryn Burr 5/28/25 Make-A-Wish: Peterbilt Day Read More James Updates Kathryn Burr 5/9/25 James Updates Kathryn Burr 5/9/25 James Update: Another Step in His Fight Read More Travel, Baltimore Trips Kathryn Burr 4/25/25 Travel, Baltimore Trips Kathryn Burr 4/25/25 Flying, Baltimore, and Wishes Read More James Updates Kathryn Burr 4/3/25 James Updates Kathryn Burr 4/3/25 James’s Vision: An Update Read More My Thoughts Kathryn Burr 3/16/25 My Thoughts Kathryn Burr 3/16/25 One Year Later… Read More Awareness Kathryn Burr 2/24/25 Awareness Kathryn Burr 2/24/25 Rare Disease Week: February 24-28 Read More Awareness Kathryn Burr 2/17/25 Awareness Kathryn Burr 2/17/25 Matching Reminder Read More Research Updates Kathryn Burr 2/15/25 Research Updates Kathryn Burr 2/15/25 Hope for the Future Read More My Thoughts Kathryn Burr 1/9/25 My Thoughts Kathryn Burr 1/9/25 Christmas, Insurance, Infusions… Oh My! Read More Awareness Kathryn Burr 12/10/24 Awareness Kathryn Burr 12/10/24 Fighting for James Read More My Thoughts Kathryn Burr 12/9/24 My Thoughts Kathryn Burr 12/9/24 A Different Kind of Christmas Read More Travel, Baltimore Trips Kathryn Burr 11/19/24 Travel, Baltimore Trips Kathryn Burr 11/19/24 Post Baltimore Read More Travel, Baltimore Trips Kathryn Burr 10/17/24 Travel, Baltimore Trips Kathryn Burr 10/17/24 Baltimore Part 2! Read More Fun Activities Kathryn Burr 9/23/24 Fun Activities Kathryn Burr 9/23/24 Giddy Up! Read More James Updates Kathryn Burr 8/28/24 James Updates Kathryn Burr 8/28/24 Doing Well! Read More Travel Kathryn Burr 7/25/24 Travel Kathryn Burr 7/25/24 Beach Bums Read More Travel Kathryn Burr 7/14/24 Travel Kathryn Burr 7/14/24 The Road to St. Louis Missouri Read More My Thoughts Kathryn Burr 7/4/24 My Thoughts Kathryn Burr 7/4/24 It’s Been A While… Read More Awareness Kathryn Burr 6/9/24 Awareness Kathryn Burr 6/9/24 Batten Disease Awareness Day Read More Older Posts
Kathryn Burr 7/9/25 Kathryn Burr 7/9/25 Make-A-Wish Trip Update: Part 2 — BNSF & Grapevine Railroad Read More
James Updates Kathryn Burr 5/9/25 James Updates Kathryn Burr 5/9/25 James Update: Another Step in His Fight Read More
Travel, Baltimore Trips Kathryn Burr 4/25/25 Travel, Baltimore Trips Kathryn Burr 4/25/25 Flying, Baltimore, and Wishes Read More
James Updates Kathryn Burr 4/3/25 James Updates Kathryn Burr 4/3/25 James’s Vision: An Update Read More
Awareness Kathryn Burr 2/24/25 Awareness Kathryn Burr 2/24/25 Rare Disease Week: February 24-28 Read More
Research Updates Kathryn Burr 2/15/25 Research Updates Kathryn Burr 2/15/25 Hope for the Future Read More
My Thoughts Kathryn Burr 1/9/25 My Thoughts Kathryn Burr 1/9/25 Christmas, Insurance, Infusions… Oh My! Read More
My Thoughts Kathryn Burr 12/9/24 My Thoughts Kathryn Burr 12/9/24 A Different Kind of Christmas Read More
Travel, Baltimore Trips Kathryn Burr 11/19/24 Travel, Baltimore Trips Kathryn Burr 11/19/24 Post Baltimore Read More
Travel, Baltimore Trips Kathryn Burr 10/17/24 Travel, Baltimore Trips Kathryn Burr 10/17/24 Baltimore Part 2! Read More
