Kathryn Burr 4/21/26 Kathryn Burr 4/21/26 Read More Kathryn Burr 2/22/26 Kathryn Burr 2/22/26 The Funeral Link Read More Kathryn Burr 2/12/26 Kathryn Burr 2/12/26 An Entry I Never Wanted to Write Read More Kathryn Burr 12/20/25 Kathryn Burr 12/20/25 A Season of Magic, Light, and Reality Read More Kathryn Burr 11/13/25 Kathryn Burr 11/13/25 James’s Story on UNC’s Blog Read More Kathryn Burr 10/26/25 Kathryn Burr 10/26/25 A (Very) Late Update — But Worth the Wait! Read More Kathryn Burr 9/4/25 Kathryn Burr 9/4/25 Holding Our Breath and Venting Frustrations! Read More Fun Activities, James Updates Kathryn Burr 7/30/25 Fun Activities, James Updates Kathryn Burr 7/30/25 Summertime Fun Read More Fun Activities, Make-A-Wish Kathryn Burr 7/9/25 Fun Activities, Make-A-Wish Kathryn Burr 7/9/25 Make-A-Wish Trip: Part 2 — BNSF & Grapevine Railroad Read More Fun Activities, Make-A-Wish Kathryn Burr 5/28/25 Fun Activities, Make-A-Wish Kathryn Burr 5/28/25 Make-A-Wish: Peterbilt Day Read More James Updates Kathryn Burr 5/9/25 James Updates Kathryn Burr 5/9/25 James Update: Another Step in His Fight Read More Travel, Baltimore Trips Kathryn Burr 4/25/25 Travel, Baltimore Trips Kathryn Burr 4/25/25 Flying, Baltimore, and Wishes Read More James Updates Kathryn Burr 4/3/25 James Updates Kathryn Burr 4/3/25 James’s Vision: An Update Read More My Thoughts Kathryn Burr 3/16/25 My Thoughts Kathryn Burr 3/16/25 One Year Later… Read More Awareness Kathryn Burr 2/24/25 Awareness Kathryn Burr 2/24/25 Rare Disease Week: February 24-28 Read More Awareness Kathryn Burr 2/17/25 Awareness Kathryn Burr 2/17/25 Matching Reminder Read More Research Updates Kathryn Burr 2/15/25 Research Updates Kathryn Burr 2/15/25 Hope for the Future Read More My Thoughts Kathryn Burr 1/9/25 My Thoughts Kathryn Burr 1/9/25 Christmas, Insurance, Infusions… Oh My! Read More Awareness Kathryn Burr 12/10/24 Awareness Kathryn Burr 12/10/24 Fighting for James Read More My Thoughts Kathryn Burr 12/9/24 My Thoughts Kathryn Burr 12/9/24 A Different Kind of Christmas Read More Older Posts
Fun Activities, James Updates Kathryn Burr 7/30/25 Fun Activities, James Updates Kathryn Burr 7/30/25 Summertime Fun Read More
Fun Activities, Make-A-Wish Kathryn Burr 7/9/25 Fun Activities, Make-A-Wish Kathryn Burr 7/9/25 Make-A-Wish Trip: Part 2 — BNSF & Grapevine Railroad Read More
Fun Activities, Make-A-Wish Kathryn Burr 5/28/25 Fun Activities, Make-A-Wish Kathryn Burr 5/28/25 Make-A-Wish: Peterbilt Day Read More
James Updates Kathryn Burr 5/9/25 James Updates Kathryn Burr 5/9/25 James Update: Another Step in His Fight Read More
Travel, Baltimore Trips Kathryn Burr 4/25/25 Travel, Baltimore Trips Kathryn Burr 4/25/25 Flying, Baltimore, and Wishes Read More
James Updates Kathryn Burr 4/3/25 James Updates Kathryn Burr 4/3/25 James’s Vision: An Update Read More
Awareness Kathryn Burr 2/24/25 Awareness Kathryn Burr 2/24/25 Rare Disease Week: February 24-28 Read More
Research Updates Kathryn Burr 2/15/25 Research Updates Kathryn Burr 2/15/25 Hope for the Future Read More
My Thoughts Kathryn Burr 1/9/25 My Thoughts Kathryn Burr 1/9/25 Christmas, Insurance, Infusions… Oh My! Read More
My Thoughts Kathryn Burr 12/9/24 My Thoughts Kathryn Burr 12/9/24 A Different Kind of Christmas Read More
